We as a Parents truthfully appreciate and want to say Big Thank You To Give.Asia for allow us plight fund on social media. A million thank would be enough to people or strangers that come to our life's helping hand when we were almost end... I believe the world is one big family and we need to help each other even if u guys are struggling with your own personal problem. The smallest deed is better than greatest intention. Yet the feeling of happiness is when you guys makes the world a better place to live in for my family. From the bottom of my heart and on behalf of my son and hubby, a big Thank You for helping my son Baby Rezki... May God Bless You and Your Family...
Thank you so much for looking at our campaign!
My Baby Rezki is 6 month old, and was born with Left Congenital Diaphragmatic Hernia intraop findings of a Bochdalek hernia (type B) with stomach, part of pancreas, bowel and spleen in chest.
He on Synagis, completed 4 doses, next and last dose on 25/5/2017.
Feed intolerance at birth with mild initially required continuous tube feeding. Current feeding: 120ml 3hourly of Neocate, 20-40ml by orally, remainder via NGT on follow up StFeed.
Weight gain has been good ever since starting of Neocate.
Development milestones: smiling socially, turning to voice and sound, still not very good at lifting head off bed when prone, babbling well, tracking in 6 directions of gaze,right upper eyelid ptosis, still with significant head lag when lifted from bed in supine; symmetrical movements. On Follow Up For Growth and Development With Neonates.
Admitted March 2017 presentation with failure thrive and Eczema. Referred to Dermatology on 20/3/2017. Seen by Doctor impression generalized eczema secondary to cow milk protein allergy. Eczema showed vast improvement after switching feeds. Subsequently stopped steroid cream as eczema improved.
Admitted 2/5/17 for eczema herpeticum with secondary bacterial infection: Hsv swab positive, treated with acyclovir... Reviewed by Dermatology on 31/5/17.
Cow Milk Protein Allergy diagnosed during admission in March 2017 feeds switched form similac to neocate good weight gain in ward after converting to Neocate (mostly given through NGT) last seen in Gastro Clinic Doctor on 27/4/17 to continue Neocate Formula.
He on Zinc on 23/3/2017 given 5 weeks supply of zinc, to follow up with gastro at next TCU.
Subtle Dysmorphism at birth (retrognathia, small right eye, right testes undescended with hypospadias left pulmonary artery, small. Last seen 12/12/2016.
Hypoplastic left pulmonary artery - mild, small artrical septal defact/ patent foraman ovale, patent ductus arteriosus closed. Post- operative left diaphragmatic hernia. Tcu cardiology on 7/6/2017
Left underscended testis with hypospadias
- last seen by Pas on 20/1/17
- proximal penile hypospadias with chordee planned for orchidopexy and hypospadias repair at a later stage.
- next Tmc on 21/7/17
Above all about His medical issues.
Fyi, starting from 1st June 2017 Msw will Rest My Case... Reason From Msw as we got one lump some from public donors so that the reason we dun get anymore help from them anymore. But Alhamduillah, since Baby Rezki discharge From Icu & Special care till today. we get asset from msw by 80% & 20% by parents...
He going for early intervention program for infant & children (EIPIC) seeks to equip infants and young children with special needs with improved motor, communication, social, self-help and cognitive skills.
What adds to the pain is that he can only fed by feeding tube…
He can only be feed by Neocate, approximately $107 per tin, which only last for 2 days! I cannot breast feed as the natural milk stops after 2 months, and I’ve even tried having various nutrients to boost but to no avail.
There’s also diaper rash and he can only be on Huggies $60+ for 3 packs for a mth, used Huggies & Pigeon Wipe Last but not least, he can only use QV Body Wash Oil & Qv Shampoo for his sensitive skin...
We know that there will be mountainous hospital bills for us, and as per doctor’s order, he has to be on special formula milk which costs $1605 per month, and can only use huggies brand due to his diapers rashes.
He’s been in and out of the hospital since he was born, and he’s been fighting the disease ever since, it’s always painful to see your own baby in the ward, lying there and we as parents can’t do anything.
Our family are financially challenge as my husband is the sole breadwinner of the family, earning less than $1600 per month, and I can’t work because I have to be around to look after Rezki. I also have to look after my mother in-laws as they unwell, hence, even further prohibit me from working current.
We hope to seek your contributions will help Baby Rezki direct medical bills expenses, but also with the Neocate Formula...
No Amount is too small to help us.
Please share and like this campaign with your friends and family. Our entire family greatly appreciates your prayers and support in our time of need.
Mother of Baby Rezki, Suriyana Asmoni